Helping Hand ?>

Helping Hand

I can’t help but wonder how much of my self-consciousness would be decreased if my hand was different — if it was simply a smaller hand, not a deformed one.  I know that many with PS have five full digits that are a smaller version of their “good hand.”  I suspect that is a rather different experience than missing digits and having a hand that doesn’t look anything like a hand. These past three days my kids and I were…

Read More Read More

Helping Hand ?>

Helping Hand

I can’t help but wonder how much of my self-consciousness would be decreased if my hand was different — if it was simply a smaller hand, not a deformed one.  I know that many with PS have five full digits that are a smaller version of their “good hand.”  I suspect that is a rather different experience than missing digits and having a hand that doesn’t look anything like a hand. These past three days my kids and I were…

Read More Read More

Coming soon ?>

Coming soon

  The paperback copy of Overcomer: Rising Above the Challenges of Poland Syndrome is nearly complete. It will be available on Amazon.com in shortly.  Stay turned…

Coming soon ?>

Coming soon

  The paperback copy of Overcomer: Rising Above the Challenges of Poland Syndrome is nearly complete. It will be available on Amazon.com in shortly.  Stay turned…

Peek-A-Boo ?>

Peek-A-Boo

After a little getting lost time, I finally found the office.  It was an obscure building in tucked away at the end of a rocky driveway.  I walked inside to meet with the alumnus who would conduct the required interview for my application to Penn. Never much enjoying the process of meeting new people, and easily intimidated, I am tremendously nervous for this interview that could potential make-or-break my application. I sit down in the chair across from Dr. Schmidt. I…

Read More Read More

Peek-A-Boo ?>

Peek-A-Boo

After a little getting lost time, I finally found the office.  It was an obscure building in tucked away at the end of a rocky driveway.  I walked inside to meet with the alumnus who would conduct the required interview for my application to Penn. Never much enjoying the process of meeting new people, and easily intimidated, I am tremendously nervous for this interview that could potential make-or-break my application. I sit down in the chair across from Dr. Schmidt. I…

Read More Read More

Flashback to Former Days ?>

Flashback to Former Days

“I have your bathing suit” she said to me with a gleeful smile, awaiting my response. “What?  Your kidding, right?” “Nope, I’ve got one for you.” “Mommy, you have a bathing suit?” comes an excited little voice through the car window as she looks on to the conversation between me and Ms. J, a friend we stopped by to say hello to on our way home. “Ha, no, I don’t have a bathing suit.  I don’t swim,” I say in…

Read More Read More

Flashback to Former Days ?>

Flashback to Former Days

“I have your bathing suit” she said to me with a gleeful smile, awaiting my response. “What?  Your kidding, right?” “Nope, I’ve got one for you.” “Mommy, you have a bathing suit?” comes an excited little voice through the car window as she looks on to the conversation between me and Ms. J, a friend we stopped by to say hello to on our way home. “Ha, no, I don’t have a bathing suit.  I don’t swim,” I say in…

Read More Read More

Struggle is Universal ?>

Struggle is Universal

Growing up I often felt alone and isolated.  My struggles were so different, so unique.  I didn’t know anyone else with a hand like mine, so surely no one else could possibly understand. In hindsight, I think I would have felt equally alone even if I had 5 classmates with PS.  I would have still thought, “They don’t understand.  My struggles are different and unique.” The reality is that struggle is universal.  We ALL deal with it in different ways….

Read More Read More

Struggle is Universal ?>

Struggle is Universal

Growing up I often felt alone and isolated.  My struggles were so different, so unique.  I didn’t know anyone else with a hand like mine, so surely no one else could possibly understand. In hindsight, I think I would have felt equally alone even if I had 5 classmates with PS.  I would have still thought, “They don’t understand.  My struggles are different and unique.” The reality is that struggle is universal.  We ALL deal with it in different ways….

Read More Read More